Help for Dementia

An older woman came up to the register, short white hair slightly curled, wearing a bright turquoise blue jacket with a mandarin collar. “Do you have THE 36 HOUR DAY”? she asked.

“We do,” I said, “It’s right over here.” I lead her to the section and showed her the book. “We have two different versions, one in trade paperback, one in mass market, the only difference is size and price.”

        

“I think I’ll take the smaller one,” she said. “I have to hide this when I go home, so smaller might be better.”

I paused for a moment. She seemed kind of reserved and I didn’t want to intrude, but knowing this book as intimately as I did, I wanted to offer help if I could. “This book gives a really good overview of what’s going on with Alzheimer’s and dementia. It looks at what happens to the body and how things will progress. I practically memorized it when my mom was alive.”

“Oh, good,” she said. “It was recommended by a friend of mine.” She paused. “It’s my husband,” she said.

“Oh, I’m so sorry,” I said. “I don’t know how far along he is, and this is a really good book to give you a sense of the disease and how it progresses," I said, pointing to THE 36 HOUR DAY. Another one you might consider, and one I wish I’d had when my mom was alive is this one, CONTENTED DEMENTIA.” I picked up the book and handed it to her.

       

THE 36 HOUR DAY is great in that it gives you an idea what’s happening physically and ideas for medications and other ways to help. CONTENTED DEMENTIA is from Britain, and it really talks about how to interact with the person. People with dementia often can’t remember where they are or what they are doing, and so often what we do is try to orient them to the here and now, trying to get them to focus on what’s going on right here. And that often doesn’t work. The patient doesn’t remember what’s going on now, they are often living back somewhere else in their memory. This book says to go back there with them, just go with them and talk about what they want to talk about. My dad was a doctor and he would always remember himself as being in a hospital. It was a good place for him.”

She hadn’t stopped staring at me. She said, quietly, “My husband is a doctor." She paused. "Was a doctor. He’s retired. He gets like that, he can’t remember what we’re doing right now.”

“Right,” I said, softly. “It’s hard. I actually did this pretty well with my mom, but she still got pretty distressed and I wished I’d had this book so I could have done it better.”

“The friend who recommended this one,” she said, holding up THE 36 HOUR DAY, “her husband is going through this too. My husband is too.” She smiled a little smile. “It’s going to be hard. I want to know what to expect, though.”

“Well, THE 36 HOUR DAY is great. And I really like CONTENTED DEMENTIA. You might consider getting that one later.”

“If you are recommending it, then I’ll get it now,” she said.

“I think they will be helpful,” I said. “Good luck with everything,”

“Thank you so much for all your help,” she said.

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How do you spell "Alzheimer's"?

"How do you spell Alzheimer's?", one of the booksellers asked me as she was typing a query into our Info Desk computer.

"A-L-Z-H-E-I-M-E-R-S", I said. "With an apostrophe," I said, knowing how finicky our in store search is. "Are they looking for a specific book?"

"No, we just want to see if you have anything about Alzheimer's," said the woman. She and the man with her looked to be in their early 60's, graying hair, wearing jeans.

"We have a section," I said. "Let me take you over there."

I show them THE 36 HOUR DAY. "This is a really comprehensive book about dementia that talks about how it progresses, how it is for people caring for the patient as well as the patient itself. I found it really helpful when my mom had dementia."

     


"We just had to move my mom into a facility. She couldn't live on her own any more." They looked like they were still in shock.

"That's hard. Does she know who you are?"

"Yes, she knows us," the woman said. "But she forgets what she's doing. And there was once she didn't seem to know who my husband was."

I nodded. "Another book I wish I had when my mother was alive is this one." I show her CONTENTED DEMENTIA. "The author talks about kind of a new way to help people with dementia. What people usually do is try and make the people who have dementia understand what is going on in the here and now. The problem is, the people with dementia don't remember what's going on right here and right now. They remember the past. So they get agitated because they know they should be remembering what's going on here and now. In this book, the author recommends letting them be, in their mind, wherever it is they imagine they are. My dad was a doctor and when he had dementia it seemed as though he was remembering being in the hospital, which was a really good place for him.

     

"Oh, wow," she said, looking overwhelmed. "We'll take a look at these."

"I recommend both of them really highly. THE 36 HOUR DAY
gives a really good sense of what is happening and what will happen. CONTENTED DEMENTIA doesn't really deal with the physiological aspects of dementia, but provides some really great help on how to be with people with dementia."

"Thank you so much for your help," she said.

"You're welcome. Take care."

Clicking on the book cover takes you to the Amazon.com page for each book. Clicking on the underlined book title takes you to the Barnes and Noble page for each book. Thanks for checking out the blog!